Jul
24

Social Movements and Market Transformations

In the 1990s and into the 2000s, there were effective treatments for AIDS, yet the poorest countries and people did not have access to them. How did the global transformation come about whereby treatments became more readily available, and in most countries in the Global South free? Kapstein and Busby outline how this transformation took place in "AIDS Drugs for All: Social Movements and Market Transformations" (2013). This is an excellent resource, and provides insight on 'how change happens' well beyond HIV / AIDS and health. For anyone interested in social movements, and particularly social movements that seek to change that involves markets, this is essential reading.

The authors state that their book is "about market transformations, or efforts by social movements to change global market processes and their distributive effects. Our main case study is drawn from the pharmaceutical industry, and, more narrowly, we examine how social activists and police entrepreneurs in the public and private sectors (whom we collectively refer to as "advocates") decisively shaped the market for the antiretroviral drugs (ARVs) that are used to combat HIV/AIDS" (p. vii). Why the need for the book? There are diverse narratives about why this change came about: "economists have generally argued that what brought down the price of ARVs around the world was entry by low-cost generic producers, just as these producers have driven prices down on many medications that are now on offer (see, e.g., Hellerstein 2004). In this version of events, the market acts "naturally" or "spontaneously," with new entrants forcing competition upon the incumbent firms. What this perspective overlooks, however, is that the groundwork for generic entry was laid by advocates who sought to show in the first instance that ARV delivery in the developing world was effective and who then helped to pool demand in order to create a market sizable enough to be of commercial interest. Finally, they helped spur industrialized world governments to increase foreign aid funds that were earmarked for AIDS treatment, so that developing world governments could acquire the drugs at these reduced prices. Generic drugs, in short, did not "drop by parachute" into the developing world; their entry was catalyzed by advocates, that at a minimum helped save many lives by speeding drug delivery" (p. viii).

Kapstein and Busby assess these changes with "a theory of strategic moral action" which they apply to a range of other issues. Their theory "argues that market transformations in the case of ARVs required the following: first, a market structure or favorable set of underlying economic and industrial conditions that provided opportunities or openings for an advocacy movement; second, the elaboration by the AIDS movement of a compelling frame that pitting drug company profits against global access to live-saving ARV medications; third, a political and organizational consensus or coherent "ask" on the part of the social movement that treatment should receive the highest policy priority, trumping, for example, preventing; fourth, a feasible strategy (defined in this case as one that minimized the costs of market transformation to the major players) for how a universal access to treatment market could be made to operate; finally, a set of institutional arrangements to help set the rules for the transformed market and to stabilize its operations." (p ix-x)

A tactic familiar to organizations like Oxfam, the authors argue that in "order to contest the market, however, one must first "deconstruct" is in order to identify its moving parts and target its points of weakness" (p. 10). One their point of entry is identified, the demand must be clear, consistent and coherent: "If transnational social movements are to be successful in shaping the political and economic agendas of governments and firms, they must fuse both rational / analytical and emotional / normative appeals into a single "ask"" (p. 14). Further: "Moral arguments that are diffuse do not succeed; they need focus and organization for collective action. But these are insufficient as well; they also need a feasible strategy that relates means and ends. What this suggests is that to be successful or effective, social movements also need a compelling business strategy, a feasible model of how to get from point A to point B." (p. 22) In the struggle for AIDS treatment it was not just a business case but also showing that treatment was feasible around the world: "Showing that rollout was possible in the setting of "resource constrained" economies was therefore critical to the process of getting these firms to the negotiating table" (p. 137).

They conclude: "It is our hope and belief that the AIDS example provides lessons for other advocacy movements in terms of what it takes to make a fundamental shift in market logic possible. We have been motivated to extend our argument by the many other challenges that the world now faces, including climate change, modern slavery and sex trafficking, and a host of other deadly diseases that particularly afflict women, children, and other vulnerable groups. If advocates are to help bring about market transformations, they must overcome a successive set of hurdles. These include the need to understand the market structures they face, the development of a compelling frame and coherent ask, a feasible cost-benefit strategy, and a set of institutions to stabilize any new market arrangements." (p. 276)

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Jan
18

Facilitating Systemic Change: PEPFAR and Healthcare in Ethiopia

Academics tend to focus on the negatives in international development, not giving as much attention and space to reflect on what has worked well. I previously wrote about a small-scale agricultural project. Here is a brief overview of a large-scale, long-term project that facilitated systemic change:

The same year that I first arrived in Ethiopia, in 2006, the U.S. President's Emergency Plan for AIDS Relief (PEPFAR) and a range of implementing partners began working with the Government of Ethiopia to increase access to testing and treatment for HIV/AIDS. At the time, there were significant challenges. For example: 24,400 people were being treated, of more than 250,000 than required it, making ART coverage less than 9%; only 21% of women were accessing PMTCT services while an estimated 75,000 women living with HIV were giving birth annually, resulting in a large number of children being born with HIV.



During my first two years in the country I worked with facilities supporting orphaned children, often affected by and/or living with HIV. At the time, an HIV diagnosis was considered a death sentence. Treatment was largely not available. Mothers would drop off their children at orphanages after being diagnosed. Children born with HIV had a short life expectancy, often less than five years. One of the facilities in our network was a home designed to meet the needs of children living with HIV, but due to a lack of treatment their supportive role was to ensure children had a positive and happy experience in their short lives.

I have been in and out of Ethiopia during the last decade , and since 2013 have worked for a PEPFAR-supported implementing partner. Significant progress has been made, and PEPFAR as facilitated systemic change in the healthcare system.


Healthcare Facilities (total and service-specific), 2006-2015


Today, HIV treatment is widely available, and provided freely. Patients on treatment are living normal healthy lives. Fewer and fewer children are being born with HIV, and those that are born with the virus have access to treatment. In 2005 there were more than 1,000,000 people living with HIV, more than a quarter of whom required treatment but only 24,400 had access to it. By 2015, the coverage for those requiring treatment has risen from under 9% to over 80%. The number of people receiving treatment rose from 24,400 to more than 344,000. The percent of women accessing PMTCT services rose from 21% to 57%. HIV prevalence has declined from 4.4% in 2003 to 1.5% in 2015.

Service coverage improvements are just one part of the story. The expansion of the healthcare system that enabled these changes is remarkable. The number of healthcare facilities increased from 775 to 3,447; PMTCT-providing facilities increased from 500 to 2,495, ART-providing facilities increased from 25 to 1,047, lab monitoring sites increased from 106 to 326. With the support of PEPFAR, and a host of other donors and organizations, the Government of Ethiopia has transformed the healthcare system in the span of a decade.

Lots of work remains to be done, and significant challenges are yet to be addressed. That said, it is healthy to occasionally step back and recognize what has been accomplished. HIV/AIDS is now considered to be a chronic, yet treatable, disease. A diagnosis is no longer a time for questioning the care of ones children, and treatment is freely available and widely accessible to prevent mother-to-child transmission. Ethiopia is steadily progressing toward complete treatment coverage. There have been no reported treatment interruptions during the last decade. Many leaders within Ethiopia, from government leaders to religious institutions, are speaking about HIV/AIDS. The work has facilitated systemic change, and will have a lasting legacy: not only will it have changed the lives of those living with or affected by HIV, it has contributed to the development of a public healthcare system that will serve the needs of Ethiopians now and in the future.

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Nov
20

Article Featured by Taylor & Francis

Taylor & Francis is running a series on the Millennium Development Goals (MGDs). 

One of my papers from 2012 is featured under Goal 6: Combat HIV / AIDS, Malaria & Other Diseases:

http://explore.tandfonline.com/content/est/mdg/hiv-aids


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Sep
03

New Publication in Development in Practice

Taddesse, D., Jamieson, D. and Cochrane, L. (2015) Strengthening Public Health Supply Chains in Ethiopia: PEPFAR Supported Expansion of Access and Availability. Development in Practice 25(7): 1043-1056.

Abstract:

  • When the US President's Emergency Plan for AIDS Relief (PEPFAR)-supported Supply Chain Management System (SCMS) programme began working in Ethiopia in 2006, the estimated population of people living with HIV exceeded one million, while only 24,000 were on treatment and only 50 treatment sites were in operation. SCMS and other key partners entered into this context to support the Ethiopian government in significantly strengthening the public health supply chain system, with the aim of increasing the availability and accessibility of pharmaceutical products. The country now has 1,047 treatment sites and is nearing complete treatment coverage. This article discusses how priorities were set among many competing challenges from 2006 until 2014, and how the four-step strategy of build, operate, transfer, and optimise has resulted in a successful partnership.
The full article is gated. Abstract and further publication details available via the link above. If you would like a copy of the article, send me an email.
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